The Body Discourse and Dystopian Identity Narratives of Women with Turner Syndrome
DOI:
https://doi.org/10.26485/ZRL/2020/63.1/5Keywords:
discourse analysis, dystopia, identity, narrative, positioning, Turner syndromeAbstract
The aim of the article is to compare and contrast dystopian discourse with the first-person life narratives told by females with a rare genetic disorder, Turner syndrome (TS). Employing the methodology of discourse analysis, I trace the themes related to the most challenging areas of the lives of women with TS, and find certain tendencies in the way they position themselves and others in the contemporary discourse of medical treatment, femininity and social relationships. I analyze stories whose characters are developed on the basis of experiences that their tellers lived through. I argue that the discourse of Turner syndrome and the dystopian discourse are analogous on the grounds of the rarity of the syndrome and its two main symptoms — short stature and gonadal dysgenesis.
Downloads
References
Aldridge Alexandra (1978), The Scientific World View in Dystopia, UMI Research Press, Ann Arbor, MI.
Booker Keith (1994), The Dystopian Impulse in Modern Literature: Fiction as Social Criticism, Greenwood Press, Westport, CT.
Canton Becky (2018), Now I Just Think of Myself as a Mermaid, https://www.turnersyndrome. org/blog/author/by-Becky-Canton [access: 7.07.2020].
Carley Emma (2019), Life isn’t always Easy, but it’s always Worth it!, https://www.turnersyndro¬me.org/blog/author/Emma-Carley [access: 7.07.2020].
Carlson Abbie (2018), Adoption Means We Get to Give Someone a Second Chance at Life, https:// www.turnersyndrome.org/blog/author/by-Abbie-Carlson [access: 7.07.2020].
Claeys Gregory (2010), The origins of dystopia: Wells, Huxley and Orwell [in:] The Cambridge Companion to Utopian Literature, ed. Claeys G., Cambridge UP, Cambridge.
— (2013), Three Variants on the Concept of Dystopia [in:] Dystopia(n) Matters: On the Page, on Screen, on Stage, ed. Vieira F., Cambridge Scholars Publishing, Newcastle.
— (2017), Dystopia: A Natural History, Oxford UP, Oxford.
De Fina Anna, Georgakopoulou Alexandra (2012), Analyzing Narrative. Discourse and Socio¬linguistic Perspectives, Cambridge UP, Cambridge.
Fortunati Vita (2013), Why Dystopia Matters [in:] Dystopia(n) Matters: On the Page, on Screen, on Stage, ed. Vieira F., Cambridge Scholars Publishing, Newcastle.
Gabl Jean (2018), My Parents did as they were Told — They Took me Home and Loved me, https:// www.turnersyndrome.org/blog/author/by-Jean-Gabl [access: 7.07.2020].
Hartsell Elizabeth (2018), I Love my Crazy Busy Life, https://www.turnersyndrome.org/blog/ author/by-Elizabeth-Hartsell [access: 7.07.2020].
Hong David, Scaletta Kent Jamie, Kesler Shelli (2009), Cognitive Profile of Turner Syndrome, “Developmental Disabilities Research Reviews”, 15(4), https://doi.org/10.1002/ddrr.79 [access: 7.07.2020].
Hutaff-Lee Christa, Bennett Elizabeth, Howell Susan, Tartaglia Nicole (2019), Clinical Deve¬lopmental, Neuropsychological, and Social–emotional Features of Turner Syndrome, “Ame¬rican Journal of Medical Genetics”, 181C, [access: https://doi.org/10.1002/ajmg.c.31687 7.07.2020].
Kumar Krishan (2013), Utopia’s Shadow [in:] Dystopia(n) Matters: On the Page, on Screen, on Stage, ed. Vieira F., Cambridge Scholars Publishing, Newcastle.
Mihailescu, Calin Andrei (1991), Mind the Gap: Dystopia as Fiction, “Style”, 25.1.
Odom Carrie (2018), My Hardships and Blessings, https://www.turnersyndrome.org/blog/au¬thor/by-Carrie-Odom [access: 7.07.2020].
Polashek Hannah (2018), Sometimes, You’ve got to Prove them Wrong!, https://www.turnersyn¬drome.org/blog/author/by-Hannah-Polashek [access: 7.07.2020].
ReadWriteThink (2006), Dystopias: Definitions and Characteristics, [access: http://www.readwrite-think.org/files/resources/lesson_images/lesson926/DefinitionCharacteristics.pdf 7.07.2020].
Reisigl Martin, Wodak, Ruth (2001), Discourse and Discrimination: Rhetorics of Racism and Anti-semitism, Routledge, London.
Rieser Patricia, Davenport Marsha (2019), Turner Syndrome: A Guide for Families, http://www. turnersyndrome.org/dmdocuments/TSfamily_guide092502B.pdf [access: 7.07.2020].
Terentowicz-Fotyga Urszula (2018), Defining the Dystopian Chronotope: Space, Time, and Gen¬re in George Orwell’s Nineteen Eighty-Four, “Beyond Philology: An International Journal of Linguistics, Literary Studies and English Language Teaching”, 15(3).
Toft Daniel J., Rehan Kelly M. (2014), Estrogen Replacement Therapy for Turner Syndrome Hor¬mones for Healthy Female Sex Development, https://www.endocrineweb.com/conditions/ turner-syndrome/estrogen-replacement-therapy-turner-syndrome [access: 7.07.2020].
Whitaker Ashley (2018), Who Owns the Story?, https://www.turnersyndrome.org/blog/author/ By-Ashley-Whitaker%2C-Ph.D [access: 7.07.2020].
Williams Dannelle (2019), Mastering Life my Way, https://www.turnersyndrome.org/blog/au¬thor/Dannelle-Williams [access: 7.07.2020].
Zadrożna Ilona (2013), Social Functioning of Women with Turner Syndrome. Research Results & Discussion, “Interdyscyplinarne Konteksty Pedagogiki Specjalnej”, 1.